Patient Video - What are some of the barriers that limit clinical trial participation among Native Americans?
Carol is a tribal elder from the Mille Lacs Band of the Ojibwe Nation and a lung cancer survivor. She discusses some of the barriers that impact lung cancer clinical trial participation among Native American communities, including long travel times, transportation difficulties, and health services access issues. Other challenges she discusses are the many doctors that need to be seen before getting to a lung cancer specialist, and mistrust of clinical trials due to negative historical and present-day experiences. Carol recommends Native American patients consult with experts and elders in their communities and decide for themselves how they want to approach the matters of traditional medicine and western medicine, to decide if they should be kept separate or can "walk hand-in-hand".
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1.
What has your experience been with lung cancer?
2.
What do people in your Native American community think about lung cancer clinical trials?
3.
As a Native American, would you consider taking part in a lung cancer clinical trial? What advice do you have for others?
4.
What are some of the barriers that limit clinical trial participation among Native Americans?
